1. Family Participation & Satisfaction

Organizations

Six Family to Family Health Care Centers (F2F HIC) Funded

Florida Institute for Family Involvement, Crawfordville, FL
The ARC of Illinois, Homewood, IL
Maine Parent Federation, Augusta, ME
PACER Center, Inc., Minneapolis, ME
Family Voices of Tennessee of the Tennessee Disability Coalition, Nashville, TN
Parent to Parent of Vermont, Williston, VT

HRSA's President's New Freedom Initiative #3 funds a grant program for "Family to Family Health Care Information and Education Centers (F2F HIC's) for Families of Children with Special Health Care Needs" for four years. It will implement activities so that "Families of children with special health care needs will partner in decision-making at all levels. Grants will fund state-wide, family-run centers that will, among other activities: (1) develop and disseminate needed health care, community services, and related information to families and providers; (2) provide education and training opportunities for families and providers; (3) collect and analyze data related to gaps in services and systems issues.

National Center for Cultural Competence (NCCC)

NCCC supports family participation and satisfaction and strives to increase the capacity of health and mental health programs to design, implement, and evaluate culturally and linguistically competent service-delivery systems.

Family Voices

Family Voices promotes family participation and satisfaction via a network of 40,000 families and friends, a volunteer coordinator in each state, and 10 regional coordinators. Family Voices serves as a national clearinghouse for information and education about ways to assure and improve health care for children with disabilities and chronic conditions.

ABC for Health

Founded in 1994 by public interest attorney Bobby Peterson, ABC for Health is a Madison-based nonprofit public interest law firm with a statewide service area. The agency’s mission is to provide information, advocacy tools, legal services, and expert support for Wisconsin children and families, particularly those with special health care needs, to obtain, maintain, and finance health care coverage and services.

The agency’s health benefits counseling program has become a national model for training health care providers and administrators in how to assist consumers gain access to programs and benefits that they are eligible for.

Resources

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