Champions Newsletter

To ensure access to a comprehensive system of care, families must have a way to pay for needed services. State CSHCN leaders play a key role in supporting the provision of adequate insurance coverage for families. In these times of budget shortfalls, the importance of states, communities, and families coming together to build funding mechanisms to support a system of care has never been greater. This issue brief describes strategies, web links, resources, and discussion questions related to the issue of building funding mechanisms to support a system of care for CYSHCN.

Choices, Challenges, and Options: Child SSI Recipients Preparing for the Transition to Adult Life

The Urban Institute has an article online by by Pamela Loprest and David Wittenburg that uses the newly released National Survey of Children and Families (NSCF) to study the transition experiences of child Supplemental Security Income (SSI) recipients just prior to and after age 18.

Since reforms passed in 1996, child SSI recipients must now have their eligibility for benefits redetermined at age 18 using the adult disability standard. We study the work preparation activities and family circumstances of a pre-transition cohort of young people ages 14 to 17 in 2000. We also examine a post-transition cohort of young people ages 19 to 23 in 2000, comparing income, work, personal and family circumstances of those on SSI benefits after age 18 to those who no longer receive these benefits.

Your Contributions are Welcomed

Do you run across news items that you would like to contribute to the Champions Newsletter? Please email your news items to Jon Nelson, the Champions for Progress Webmaster at jon.nelson@usu.edu. We can not guarantee that your news item will be published in the newsletter but we can guarantee they will all be considered.

The Medical Home Initiative

Once each month the Champions Newsletter focuses on one of the six performance measures and the associated national center or centers. This month's spotlight is on Performance Measure 2 (CSHCN will receive coordinated, ongoing, comprehensive care within a medical home) and The National Center of Medical Home Initiatives for CSHCN, which can be found online at http://www.medicalhomeinfo.org/.

The National Center of Medical Home Initiatives

Division Director: Amy Gibson, RN, MS

141 Northwest Point Blvd
Elk Grove Village, IL 60007

ph: (847) 434-4000
fax: (847) 228-7035
medical_home@aap.org

In fact, it was pointed out that nearly everything that the National Center of Medical Home Initiatives has to offer is available through their website. These resources are available for a wide ranging audience. The "Tools" section of the website is a good example.

The first thing to notice is that the "Tools" section of the website targets six specific audiences: Families, Youth, Health Care Providers, Communities, Insurers, and States. Each section contains resources tailored to that particular audience.

If we look closer at the "For States" link in the "Tools" section, you will find resources to help you start developing a strategic plan at the state level. Here are two examples of the Medical Home resources available for states:

Training is an important aspect of the Medical Home Initiative. The National Center of Medical Home Initiatives has developed a medical home training curriculum, which can be flexibly applied to your unique circumstances. The curriculum is available for the state or local level and in a variety of formats and lengths. Organizations that are interested in implementing the curriculum, or portions of the program, can receive a master copy of the training curriculum, Power-Point slides, marketing materials, and technical assistance at no cost. If you visit the website you will find a list of materials available and how to obtain them.

Of course, Technical Assistance is always available. Lauri Levin, the Technical Assistance Manager, can be reached by email at llevin@aap.org or by phone at (847) 434-7621. She can help you get to where you want to be regardless of where you are right now. Lauri can get you started on the whole process of creating a medical home program; she can answer your specific questions, or refer you to others within the Medical Home Initiative who can help you.

In Lauri's own words, "Our job is to help increase access to medical homes by providing individuals, communities and states with needed resources, tools, and assistance in identifying key stakeholders/ change agents. For example, we provide information on strategic planning, formal medical home and quality improvement implementation strategies, information on how to customize the medical home training curriculum to increase education and awareness of the medical home approach, etc. Technical Assistance at the National Center is provided by multiple staff who focus on various aspects of medical home implementation such as surveillance and screening, training, and evaluation." A complete listing of the technical assistance available at the National Center.

Champions would like to thank Lauri Levin at the Medical Home Initiative for her time and assistance in making this important information on medical home available.

newsletter created for: youremail@youremailaddress.com	June 07, 2005


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Building Funding Mechanisms to Support a System of Care: Issue Brief #4 To ensure access to a comprehensive system of care, families must have a way to pay for needed services. State CSHCN leaders play a key role in supporting the provision of adequate insurance coverage for families. In these times of budget shortfalls, the importance of states, communities, and families coming together to build funding mechanisms to support a system of care has never been greater. This issue brief describes strategies, web links, resources, and discussion questions related to the issue of building funding mechanisms to support a system of care for CYSHCN. Building Funding Mechanisms to Support a System of Care: Issue Brief #4 Choices, Challenges, and Options: Child SSI Recipients Preparing for the Transition to Adult Life The Urban Institute has an article online by by Pamela Loprest and David Wittenburg that uses the newly released National Survey of Children and Families (NSCF) to study the transition experiences of child Supplemental Security Income (SSI) recipients just prior to and after age 18. Since reforms passed in 1996, child SSI recipients must now have their eligibility for benefits redetermined at age 18 using the adult disability standard. We study the work preparation activities and family circumstances of a pre-transition cohort of young people ages 14 to 17 in 2000. We also examine a post-transition cohort of young people ages 19 to 23 in 2000, comparing income, work, personal and family circumstances of those on SSI benefits after age 18 to those who no longer receive these benefits. The full article is available online in PDF format at: http://www.urban.org/url.cfm?ID=411168 Your Contributions are Welcomed Do you run across news items that you would like to contribute to the Champions Newsletter? Please email your news items to Jon Nelson, the Champions for Progress Webmaster at jon.nelson@usu.edu. We can not guarantee that your news item will be published in the newsletter but we can guarantee they will all be considered. The Medical Home Initiative Once each month the Champions Newsletter focuses on one of the six performance measures and the associated national center or centers. This month's spotlight is on Performance Measure 2 (CSHCN will receive coordinated, ongoing, comprehensive care within a medical home) and The National Center of Medical Home Initiatives for CSHCN, which can be found online at http://www.medicalhomeinfo.org/. The National Center of Medical Home Initiatives Division Director: Amy Gibson, RN, MS 141 Northwest Point Blvd Elk Grove Village, IL 60007 ph: (847) 434-4000 fax: (847) 228-7035 medical_home@aap.org In fact, it was pointed out that nearly everything that the National Center of Medical Home Initiatives has to offer is available through their website. These resources are available for a wide ranging audience. The "Tools" section of the website is a good example. The first thing to notice is that the "Tools" section of the website targets six specific audiences: Families, Youth, Health Care Providers, Communities, Insurers, and States. Each section contains resources tailored to that particular audience. For States If we look closer at the "For States" link in the "Tools" section, you will find resources to help you start developing a strategic plan at the state level. Here are two examples of the Medical Home resources available for states: Medical Home State Pages: Here is information on medical home initiatives/programs for all 50 states and territories. It provides resources for identifying relevant activities in your own state as well as helping you to locate useful projects and activities in other states. Medical Home Mentorship Program: This resource is for sharing model programs and model strategies and helps raise awareness of successes and lessons learned. Training Training is an important aspect of the Medical Home Initiative. The National Center of Medical Home Initiatives has developed a medical home training curriculum, which can be flexibly applied to your unique circumstances. The curriculum is available for the state or local level and in a variety of formats and lengths. Organizations that are interested in implementing the curriculum, or portions of the program, can receive a master copy of the training curriculum, Power-Point slides, marketing materials, and technical assistance at no cost. If you visit the website you will find a list of materials available and how to obtain them. Of course, Technical Assistance is always available. Lauri Levin, the Technical Assistance Manager, can be reached by email at llevin@aap.org or by phone at (847) 434-7621. She can help you get to where you want to be regardless of where you are right now. Lauri can get you started on the whole process of creating a medical home program; she can answer your specific questions, or refer you to others within the Medical Home Initiative who can help you. In Lauri's own words, "Our job is to help increase access to medical homes by providing individuals, communities and states with needed resources, tools, and assistance in identifying key stakeholders/ change agents. For example, we provide information on strategic planning, formal medical home and quality improvement implementation strategies, information on how to customize the medical home training curriculum to increase education and awareness of the medical home approach, etc. Technical Assistance at the National Center is provided by multiple staff who focus on various aspects of medical home implementation such as surveillance and screening, training, and evaluation." A complete listing of the technical assistance available at the National Center. Champions would like to thank Lauri Levin at the Medical Home Initiative for her time and assistance in making this important information on medical home available.

newsletter created for: youremail@youremailaddress.com	June 07, 2005

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The Champions for Progress Newsletter if funded as part of the Leadership Development for Implementation of Systems of Care for Children and Youth with Special Health Care Needs Cooperative Agreement (#U42MC00241), funded by the Maternal and Child Health Bureau, Health Resources and Services Administration (DHHS) to the Early Intervention Research Institute at Utah State University. The Champions for Progress Center would like to thank John Reiss of the Institute for Child Health Policy at the University of Florida for his work collecting newsitems for this Newsletter.

Building Funding Mechanisms to Support a System of Care: Issue Brief #4

Choices, Challenges, and Options: Child SSI Recipients Preparing for the Transition to Adult Life

Your Contributions are Welcomed

The Medical Home Initiative