newsletter created for: youremail@youremailaddress.com
June 28, 2005
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Data-based Decision Making for Building a System of Care for CYSHCN
Assessment to Action is a resource to help states in data-based decision making as they work toward building a system of care. Assessment to Action is a field-tested process for state CSHCN leaders that provides guidance in engaging key stakeholders, reviewing existing data, improving measurement strategies, and using data for program planning. Assessment to Action features stakeholder-developed indicators for the 6 CSHCN outcomes along with potential tools for assisting states in measuring their progress. Assessment to Action is a dissemination product of the Measuring and Monitoring Community Based System of Care Project (M&M) funded from 1998-2003 by the Division of Services for Children with Special Needs, Maternal and Child Health Bureau.
http://www.championsforprogress.org/main/measuringMonitoringLinks.cfm
Beach Center on Disability Spring/Summer '05 Newsletter now available!
The Beach Center on Disability announces the arrival of its spring/summer e-newsletter, which focuses on individual control of funding (also known as consumer control). Featured is the real story of J.T, a young man with disabilities who leads an active, independent life in which he and his team of allies decide how his money will be spent. Also included are research summaries, groups, books, and tips on individual control of funding.
The Beach Center is also pleased to announce their new website features, which will cover the subjects of individual control of funding, transitioning to adulthood, and other related issues.
http://www.beachcenter.org/news/default.asp?id=66
Medicaid Lawsuit Over Children's Access To Medicaid Services Resumes in Texas
A 12-year court case over whether Texas provides adequate health care to children enrolled in Medicaid returned to a federal district court this week in Austin. The move follows a unanimous Supreme Court decision 18 months ago, which ruled that federal courts can require states to take corrective action in such matters. The suit says that Texas violated federal law by failing to provide adequate access to Medicaid health services for children and seeks to force the state to comply with a nearly 10-year-old consent decree.
....Plaintiff's attorney, Susan Zinn, who originally filed the class-action lawsuit on behalf of Texas children in 1993, said, "Things have only gotten worse." She added that 1.5 million children in Texas did not have checkups in 2004, compared with one million children in 1998. Zinn said, "An increasing number of children [in Medicaid] with a decreasing number of (health care) professionals to take care of them is a recipe for disaster. It's futile to ask for a service if there's nobody to provide it. (Doctors) do not open their doors freely to children who have Medicaid." Linda Halpern, lead attorney for the state, said Texas spends $16 million on Medicaid outreach annually, adding that the amount of services provided by the state are "staggering."
http://www.kaisernetwork.org/daily_reports/rep_index.cfm?hint=3&DR_ID=30831
Selected Findings on Child and Adolescent Health Care from the 2004 National Healthcare Quality/Disparities Reports
The Fact Sheet (AHRQ Pub. No. 05-P011) notes the importance of health care for children, highlights key findings from both reports in quality, access, and disparities, and provides a guide to the NHQR/DR appendix tables with more child health quality, access, and disparities information. Of interest to CSHCN Programs may be the data on asthma care. The New AHRQ Fact Sheet is now available on the web at:
http://www.ahrq.gov/qual/nhqrchild/nhqrchild.htm
States' Use of Medicaid Options for Expanding Children's Eligibility
The MCH Policy Research Center has recently released a report entitled "States' Use of Medicaid Options for Expanding Children's Eligibility." This report is available on the Policy Center web site at:
What Happens When Our Patients Grow Up? Taking on the Tough Topic of Transitional Care.
An article by Andrew Parent, MD, University of Mississippi Medical Center Pediatric Neurosurgeon from the Spring 2005 issue of the Hydrocephalus Association Newsletter.
Excerpt: "I believe that all neurosurgeons must eventually acknowledge the impediments to appropriate transitional care for our patients before we can resolve the problem for the greater good."
http://www.hydroassoc.org/newsletter/transitional_care.html
Sickle Cell Patients Are Overcoming the Odds
The following newspaper story focuses on the experiences of people with sickle cell anemia who are living longer than expected--much longer. But it is not an easy road. Read about the new treatments, the innovative approaches, and the value of home care service.
http://home.hamptonroads.com/stories/story.cfm?story=87707&ran=206027
newsletter created for: youremail@youremailaddress.com
June 28, 2005
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The Champions for Progress Newsletter if funded as part of the Leadership Development for Implementation of Systems of Care for Children and Youth with Special Health Care Needs Cooperative Agreement (#U42MC00241), funded by the Maternal and Child Health Bureau, Health Resources and Services Administration (DHHS) to the Early Intervention Research Institute at Utah State University.
The Champions for Progress Center would like to thank John Reiss of the Institute for Child Health Policy at the University of Florida for his work collecting newsitems for this Newsletter.