newsletter created for: youremail@youremailaddress.com
Jan 05, 2009
Unsubscribe from Newsletter | Subscribe to Newsletter | Forward to a Friend
Sustaining Systems and Building Alliances: Multi-State Meeting Keynote Presentations
The keynote presentations from the 2005 Multi-State Meetings are available on the Champions website. Terry Pavia's , "Building Alliances to Support a Vision When takeholders See Things Differently" and Tom Wolff's presentation, "Creating A Legacy: Successfully Sustaining Your Community Based System" are available in streaming video format.
http://www.championsforprogress.org/main/multiState2005Presentations.cfm
Models of Adult Transition Used in Pediatric Oncology
An article titled, "The adolescent and young adult gap in cancer care and outcome" was presented in part at the American Society of Pediatric Hematology/Oncology and Pediatric Academic Societies' 2003 Annual Meeting by Archie Bleyer, MD. This article addresses a variety of issues that are relevant to the transition of youth and young adults with any type of chronic health condition. The article is available from the journal, Current Problems in Pediatric and Adolescent Health Care, Volume 35, Issue 5, May-June 2005, pages 182-217. For those with electronic access to on-line journals, go to:
http://www.sciencedirect.com/science/journal/15385442
Increased Longevity Raises Long-Term Care Issues, Kass Opinion Piece Says
The number of individuals with Alzheimer's disease will likely triple by 2050, a problem compounded by a "shortage of caregivers" and a "cultural refusal to honor the need for care," Leon Kass, chair of the President's Council on Bioethics and a fellow at the American Enterprise Institute, writes in a Washington Post opinion piece. The "blessings of greater longevity are bringing profound new social challenges" for U.S. residents, such as issues related to long-term care. Access this story and related links online:
http://www.kaisernetwork.org/daily_reports/rep_index.cfm?DR_ID=32846
Social Security Benefit Eligibility Screening Tool (BEST)
The Social Security Administration provides a simple web-based tool to see if a child might be eligible for SSI & SSDI benefits. With the screening tool you can find out if you could be eligible for benefits from any of the programs Social Security administers. This tool will give you eligibility information based on answers you give to a series of questions; however, BEST is not an application for benefits.
Presentations from the 2005 MCHB Partnership Meeting Available on the Web
The 2005 Partnership meeting was entitled Maternal and Child Health: Public Health Across the Lifespan. The site features video, audio, slides, and transcripts from over 60 presenters.
http://www.cademedia.com/archives/mchb/partnership2005/
Family Reflections: A Thought-Provoking Guide to Getting Help for Children & Youth with Special Needs
The Central Massachusetts Partnership for Children and Youth with Special Health Care Needs has published Family Reflections: A Thought-Provoking Guide to Getting Help for Children & Youth with Special Needs. Built around a series of family stories, the guide is designed to supplement traditional resource directories. Children in the stories range from infancy to early adulthood and have a variety of medical, developmental, educational, and emotional/behavioral needs. Parents’ questions and concerns are extracted from the stories and matched with specific resources in the community. Also included are well-visit guidelines, advocacy tips, advice on navigating the system of services, and articles on transition for every stage of growth.
newsletter created for: youremail@youremailaddress.com
Jan 05, 2009
Unsubscribe from Newsletter | Subscribe to Newsletter | Forward to a Friend
The Champions for Progress Newsletter if funded as part of the Leadership Development for Implementation of Systems of Care for Children and Youth with Special Health Care Needs Cooperative Agreement (#U42MC00241), funded by the Maternal and Child Health Bureau, Health Resources and Services Administration (DHHS) to the Early Intervention Research Institute at Utah State University.
The Champions for Progress Center would like to thank John Reiss of the Institute for Child Health Policy at the University of Florida for his work collecting newsitems for this Newsletter.