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Jan 05, 2009


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HRSA Awards Funds to Further Promote the President’s New Freedom Initiative

HRSA has awarded grants totaling approximately $3,173,000 to a variety of grant initiatives for "Integrated Services for Children with Special Health Care Needs: The President’s New Freedom Initiative", beginning May 1, 2006.

Initiative 1: Maine Department of Health and Human Services, Augusta, Maine

Initiative 1 funds one cooperative agreement for four years to support adolescent transition, through a "Healthy and Ready to Work (HRTW) National Resource Center". This national center will provide national leadership, develop and disseminate materials, collect evidence based information, analyze trends in transition issues and identify and work with major national public and private initiatives to integrate youth with special health care needs.

Initiative 2: Early Intervention Research Institute at Utah State University, Logan, UT

The purpose of Initiative 2, the "National Resource Center for Inclusive Community Integrated Services", is to provide national leadership for four years to assure that services at the community level are inclusive and easy to use. To fulfill this responsibility the National Resource Center will, among other activities: (1) identify and work with major national public and private community development initiatives to integrate children and youth with special health care needs (CYSHCN); (2) facilitate linkages between inclusive community development initiatives and State Title V Programs; (3) develop and implement a community recognition program that focuses on successful community integration models; and (4) collect, analyze, and expand the current body of evidence-based data on the process and outcomes of integrating community systems.

Initiative 3: Six Family to Family Health Care Centers Funded

  • Florida Institute for Family Involvement, Crawfordville, FL
  • The ARC of Illinois, Homewood, IL
  • Maine Parent Federation, Augusta, ME
  • PACER Center, Inc., Minneapolis, ME
  • Family Voices of Tennessee of the Tennessee Disability Coalition, Nashville, TN
  • Parent to Parent of Vermont, Williston, VT

Initiative 3 funds a grant program for "Family to Family Health Care Information and Education Centers (F2F HIC's) for Families of Children with Special Health Care Needs" for four years. It will implement activities so that "Families of children with special health care needs will partner in decision-making at all levels. Grants will fund state-wide, family-run centers that will, among other activities: (1) develop and disseminate needed health care, community services, and related information to families and providers; (2) provide education and training opportunities for families and providers; (3) collect and analyze data related to gaps in services and systems issues.

Initiative 4: Six State Implementation Grants for Integrated Community Systems Funded

  • The Navajo Nation, Window Rock, AZ
  • Trustees of Dartmouth College , Hanover, NH
  • Rhode Island Department of Health, Providence, RI
  • Maine Department of Health and Human Services, Augusta, ME
  • Health Research, Inc./NYS Dept of Health, Rensselaer, NY
  • North Carolina Department of Health and Human Services, Raleigh, NC

The purpose of Initiative 4 is to support statewide implementation of a comprehensive plan to integrate all core components of a system of services that is inclusive of CYSHCN and their families, and to integrate those activities into State Title VCSHCN Block grant activities. Six sites awarded grant funding for three years under the New Freedom Initiative: State Implementation Grants for Integrated Community Systems.


newsletter created for: youremail@youremailaddress.com

Jan 05, 2009


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The Champions for Progress Newsletter if funded as part of the Leadership Development for Implementation of Systems of Care for Children and Youth with Special Health Care Needs Cooperative Agreement (#U42MC00241), funded by the Maternal and Child Health Bureau, Health Resources and Services Administration (DHHS) to the Early Intervention Research Institute at Utah State University.

The Champions for Progress Center would like to thank John Reiss of the Institute for Child Health Policy at the University of Florida for his work collecting newsitems for this Newsletter.